An Apology to My Little Bug

It's been a lonely couple of weeks for me.

Sometimes being a mom of a kid with special needs, especially behavioral special needs, just plain sucks.  It's stressful, emotionally draining, depressing, and scary, which leads some (me) into periods of isolation as I try to swing our family pendulum back into sync with some serious sleep and diet modifications and a super low-key environment.  Even as I took the boys on a 5-day vacation last week, I felt so off, a mirror to Little Bug's off mood (that was likely a bit of a cycle between the two of us by the end).

And that isolation extended to my writing, which I deliberately avoided, simply because the things I wanted to say were not things I actually wanted to say.

In fact, I just had about seven additional paragraphs to this post detailing my last couple weeks that I just deleted.  Because it wasn't what I wanted to say.

Instead, I want to write about how amazing my Little Bug is and how humbled I am tonight to be his mother.

Little Bug came to us as a sweet, beautiful 10-month-old infant.  He's always been so far behind in development that Appa and I just grew accustomed to parenting him at his delayed age.  He was our first child, and our parenting experience has been entirely built upon ignoring all conventional parenting methods and milestones. What we have given as compassion, acceptance, and avocation have in some instances been nothing more than enabling or selfishness.

That has now been put into blessed clarity for us.

Little Bug is a couple months away from turning 4.  Yet, he has never been formally sleep trained and has been cosleeping in a most unhealthy way since his first birthday.  Why have we never bitten the bullet and kicked this habit?  Oh, that would be because he couldn't be walk, then he couldn't stay in his big boy bed, then he couldn't fall asleep without us, then he needed his sleep and it was easier to put him to sleep in our bed, then we would be going on vacation, then he was getting a new room, then he got a new brother, then then then then then.

All excuses, every one of them.  The real reasons were that Appa and I loved having him cuddle in our bed with us and that we simply didn't have enough faith in him to be able to go to sleep on his own and cognitively follow the rules.

In the last four days, he's almost completely sleep trained.  We still have tears, but they are short.  And most importantly, he understands the expectations and accepts them.  Appa and I are ashamed to think of the YEARS of sleep deprivation we have imposed on our tough son simply because we underestimated him. 

And we started potty training him today, too.  Again, I didn't think this would work, at all.  If anything, I thought Little Bro would potty train and help eventually with Little Bug's training.  After only 4 hours, my son who has never peed on the potty in any intentional way was telling us, over and over during dinnertime, no less, that he needed to go potty.  He kept his big boy pants dry for hours as he motored back and forth to put his business where it needed to be.  (And he started taking the stairs without holding any railings.....another first for this super kid.)

In 3 days, I actually think he'll be potty trained.  Officially.  And it shocks me, to be honest.  Both Appa and I are pretty incredulous.

And we're both a bit humbled and ashamed to have underestimated our son in such huge ways.  In every challenge we've thrown his way, he's breezed through it.  Not even really struggled, but just breezed through it.  He's shown us time and time again that he's up for the challenge.

We just haven't been challenging him like we thought we were.

So although there are still a lot of challenges facing Little Bug that can't be fixed with a modified sleep training program or a 3-day miracle potty training program, there are a lot of little life lessons that Little Bug IS probably ready for.  And that is going to force us to change how we parent him a bit, which includes me cutting out some of our isolation therapy. Which is probably going to make us all happier.

I know every mother thinks this of their child, but I just really feel deeply that there is something special about Little Bug and what his future holds.  Of course I think Little Bro is very special, too, but I feel strongly that Little Bug was given his gifts of a fighting spirit, charming disposition, and joy of life to turn his challenges into something really amazing.  He's going to inspire people in some way, some day; I know it.  I know it.   And someday, when he reads this note from his mother in the midst of all my random musings, I hope he knows that I, more than anyone else in this world, have been blessed beyond measure by him simply being who he is.