Bye Bye, Anne

A little over two years ago Anne came into our lives. I'll never forget the day I welcomed her into our home, just a couple days before I was set to go back to work after a 6 week maternity leave.

My precious 11 month old was sitting in his highchair, strapped in by a 4-point harness because his back couldn't support his weight enough to sit. His hands lay limp under the tray littered with Cheerios broken in half that I occasionally put on his tongue because he couldn't pick them up to put them in his mouth, nor could he handle an entire cheerio without choking.

Unlike the rest of the parade of therapists that had come through our home in the past weeks, Anne was immediately different. Polite and brash all at once, she got straight to business and within that first hour had determined my son's hypotonia extended to all the muscles in his mouth, including his tongue. I thought a speech therapist was supposed to teach your kid some words and signs, instead she opened up a world that interconnected speaking and eating and drooling and moving. She didn't just teach him; she taught me.

For the last 2 years she has seen my son every week. She's seen him since before he could creep on his tummy through everything up to his wobbly running. She's heard the "ommmmmma" and she's heard him say sentences with verbs. She is on his short list of people he talks about when I ask him about his day.

She's sat on the phone with me as I've cried tears of frustration and joy. She advocated for us when we had problems with our occupational therapists, even picking up the slack and incorporating more OT into her own sessions to make sure Little Bug's needs were being met.

Last Friday I sat in a room during an IEP meeting with seven women who professionally but clinically broke down every nuance of my child, using the word "significantly delayed" over and over. Although the tears were close to coming most of the time, the only time I truly let a tear fall was during Anne's comments, who had completely rearranged her schedule to come at our special request as an advocate for our family.

Because as this therapist spoke about my son and his amazing progress, her eyes welled with tears of pride.

If you love my child, I will love you.

Today was Anne's last day. Her position was as an early intervention resource, and Little Bug ages out of that program next Monday. Even though Little Bug will continue to get the services he needs with his new program, my heart is broken at having to say good bye to Anne.

Anne taught my son how to talk, how to sign, and how to dare to communicate, but Anne taught me how to advocate for my son so he can continue to do those things.

And she will be truly missed and not forgotten.